I have had Chronic Fatigue Syndrome since at least 2000 and it is believed it has been with me since before then. I suffered a stroke in October 2000 and I found that because I was at my lowest point after the stroke the CFS really took off in a big way.
In England I had a support network which I was able to turn to when things got bad but mainly my husband was my carer.
When we moved to France in 2004 I found that Chronic Fatigue Syndrome and its associated conditions are not as readily accepted as an ‘illness’, I could find no one who really understood what the illness is or how to treat it.